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DiabeticallyYours

Living life as a Type 1 Diabetic.

Archive for the tag “hypoglycemia”

All in due time; a small post for small changes

You know what I’ve been waiting to do but haven’t yet? A Vlog. About weight loss. I’m sure It’d be much more motivational to me; it would help me cope with my goals a little better. Like the kick in the butt you sometimes need to achieve your goals. The only problem is… Well, there is no problem. The problem is me. I have the proper camera, I have the right equipment to do it and, hell, I have plenty of imagination to give. But, like most things in the past, I keep pushing it to ‘tomorrow’.

“I should vacuum the house. Bah, tomorrow.”

“I should make that recipe! Meh, tomorrow…”

It’s really annoying. Why is it that for some things I have enough motivation for hundreds and when it comes to other productive things, it scales right back down to zero? It’s something I have to figure out and it most definitely is something I need to change. Starting yesterday.

So, weight loss wise, I know I could do better. But the more I lose, the less insulin I need, and so the more hypoglycemias I have. What do I do when that happens? Drink juice. 100 calories a pop plus a few almonds. Going straight back to my thighs. I know I shouldn’t let these things get to me because I’ve lost some weight so far, but still, it’s frustrating. Do all that work for what seems like nothing. Spend calories, drink ’em right back. Stupid pancreas! Why did you have to die! It’s making fat girls like me struggle even more and be discouraged much more easily.

Okay. Plan B. Stop being discouraged. You can do this. Your weight loss coach told you; five pounds in a month is a good thirty in just half a year. Which is true, when seen that way, but still frustrating when you see people next to you drop double what you did in the same amount of time.

Okay. Plan C. Stop being discouraged and stay positive.

Or maybe plan D. Stop being discouraged, stay positive, and never give up.

There’s the whole alphabet to go, afterall.

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Crazy busy, crazy BG.

OH dear gods.

Hi! It’s me again! I’m… Back! Somehow! It’s been one crazy ride through the gaming community on my part.

All this started with me starting a blog about a game I really love, Guild Wars 2. It’s actually a fan site and, after ArenaNet promoted it on their Facebook page, it boomed. I got really busy managing this community and, well, I was in the process of moving, too! So, creating a new community, moving to a new city, packing, unpacking, then new plans about Chronicles of Tyria (The community) with a brand new podcast, contests, holy gee I’m extremely busy. Being with Aaden, alone at home (My husband got another contract in another province!) I’m managing a community, a podcast, a toddler, a house and, most importantly, diabetes.

How hard is it to manage diabetes when you’ve got crazy events going on? Well, I’m really not good at it, to be honest. I need to setup a routine. I need to start working out again. (Oh yeah, don’t get me started on my weight loss journey, because that went down the Drain!) Good news is; Aaden is starting daycare at the end of August. So I’ll be able to work during the day on the community (Right now I ‘work’ until 2 or 3 o’clock in the morning and during Aaden’s naps) and I’ll get some more sleep.

The upside of working so hard is that the community is blooming. We’ve hit more than 80 subscribers in 2 weeks for our podcast, more than 2.5k views! Super stoked about it!

Downside; I’m not testing my BG as often as I could. Sometimes I end up having hypos during the podcast recordings, so I have to set my mic on mute and drink a juice box. Not the best diabetes management. Sometimes I test before meals and I’m at 15. What was that about? Oh, right… I didn’t test before breakfast because I was answering emails, keeping  up with Facebook and twitter, scheduling meet ups… And the list goes on.

Also, I’d like to point out something to people who say that “Being a stay at home mom give you all the time in the world to do everything you need to do”.

Having a baby/toddler/kid at home is like being at work. But work lasts around, oh, ALL DAY, you get no break and you have to cook meals for your boss on top of it. It’s all fun and games when we go to the park, when we cuddle after we played for a while, but you’re always busy non the less. You pick up toys; constantly. You do groceries but really, you have to hurry up so you can get home before lunch, prepare lunch, undo bags, feed your kid, put him to bed for his nap and then, you get to sit down for about 15 minutes. Afterwhich you need to do the dishes, clean whatever mess you left in the kitchen and all the food your son threw on the ground because it looked like the best thing to do at the time… And then, you prepare things for diner and work a little if you can.

I’m not sure I want to list all the things you need to do, but having to manage diabetes on TOP of it all, I find extremely difficult.  Sometimes I don’t test before bed anymore. I’m so extremely tired that I flop in bed, sometimes still dressed, just to get up in the morning and since, lather, repeat.

Here’s a little look see at my very bad diabetes management. Don’t be scared!

Courtesy of my super duper iBGStar which is neglected!

 

When I went to see my endo last april… She said my control was excellent. I wonder how disappointed she would be right now.

And somehow, I wish more people would understand what it feels like to live with diabetes. Maybe they would give me a break sometimes!

I will be updating my blog more often, that’s for sure. I won’t be rambling much on the community, but more about diabetes and about being a mom, you know, things I used to be blogging about Haha!

#DBlogWeek – One thing to improve.

Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

When it comes to my flaws (and I have many of them), I’m not scared to admit them. I know I am a control freak, I like when things go my way. I know that I tend to burst in anger instead of assessing things (Never on a professional level though.) And I try to fix things, I work on my flaws, and sometimes it takes a while, sometimes only a matter of days. One thing I have not been doing ever since I gave birth to my son, diabetes wise, is to test my blood sugar before bed and right after I get up. And it’s important, you know, so that my BG stays nice during the whole 6 or 7 hours of sleep. If I have a BG of 10.5 (or 180mg) I would normally wait until it’s fixed. And I tend to never test. I have a snack at night, my pump beeps during sleep time for my BG reminder, I don’t hear it and keep on dreaming.

The next morning, I tend to my son; diaper change, sippy cup, cuddles, breakfast. It takes about half an hour or so before we sit down to have breakfast, and that’s when I test; right before eating. Most of the time my BG is good, but there are those crazy 2 weeks in the month where it’s not so good. Female hormones; gotta love ’em. Sometimes I test before breakfast and I’m not suprised to see a 15. (Or 270 for you mg readers).

I should test at those times. Having high blood sugar when you sleep, on long term, isn’t necessarily great. And then I’m mad at myself for losing this crazy control I used to have when I was pregnant.

And for not having a CGM.

Diabetes and memory loss.

I had a half day off from being a mommy and wife yesterday as I took the road to my endocrinologist’s. Sunny day, sunglasses, lounge music… Driving an hour to go shopping and another hour to my appointment. (My endo is far away because I moved last year but kept her.) I left my son with my husband and, for the first time in a while, had some time to myself, for myself.

I spent about 45 minutes in my favourite book store. It felt good.

I was happy to see my endo and she was happy about my results and seeing the iBGStar in action, live, for the first time. She knew about it but never really had seen one in person, so going through my stats and multiple sections was fun for her. I could tell by the glint in her eyes. You know, like when you have something shiny in your hands. But I digress.

I remembered a small conversation I had with Leah about high BG and memory loss, so I asked my endo about it. And here’s what she told me.

High blood sugar and confusion come together. Just like low blood sugar’s confusion state, but in a less drastic way. However, high blood sugar is not linked to dementia or memory loss. Long term, low blood sugar is. And by long term, she said “Frequent low blood sugar over the lapse of 10, 15 years or more”. Your brain needs sugar in order to feed itself, and so the constant low level of sugar in your blood can lead to brain damage that cause memory loss, dementia and all those nasty things. She also said that this study was done on type 2 diabetics on insulin treatment and that type 1 diabetics did not have such a study. Because type 1 is rare and that type 2 has become an epidemic, they have not bothered to conduct the study within type 1s.

I’m assuming it’s the same, if not worse, with type 1s.

So there you have it. Low blood sugar can cause damage to your memory, as studies show. Hence why it’s so important to take care of your diabetes.

Oh, and my latest A1C? 6.2! Awesome!

The blood test chronicles.

It might sound weird, but every 3 to 6 months, I am excited about my blood tests. It might be just a diabetic thing, but I’m thrilled to go to my endocrinologist’s to have my test results read to me. Partly because I love to know what my body has been up too from change to change. Especially now with my weight loss and my beautiful BG readings, I am expecting a nice A1C. My last one, 6 months ago, was of 6.7 and I wasn’t very thrilled with it. My BG was high very often and I wasn’t being very careful about it, mostly because Aaden was still very young and testing my BG was optional to me. I had other priorities, being alone with my son.

And so next week, I have an appointment with my endo, so I need to go for blood tests. Only if my body would cooperate.

I have been so active, eating so well, my blood sugars have been great! Only thing is that I have hypos during the night now. So, two nights ago, I needed to drink and eat in the middle of the night, so I couldn’t go for the blood tests since I need to be fasting for 12 hours. Last night, everything went well, but as I got up this morning and tested my BG, I saw 3.2 mmol on the meter (57.6mg). No way am I going to drive and hurry up to the hospital for blood tests with this reading. So tonight, I think my best option is to set my basal down on my insulin pump. 75% maybe. I have to get those done to have my results next week!

To think that before being a diabetic, I was scared of blood tests, scared of needles… And now my daily life has them around and I don’t even notice it. Crazy how you get used to things. And how people around you get used to those, too.

In other news, my husband learned that his step-father was diagnosed with Type 2 diabetes this week. It is becoming an epidemic. Almost everyone has someone in their family with type 2 diabetes. Sometimes though, I wish they were type 1 so I could relate with others like me, in person.

The strength of a non diabetic husband.

I don’t mention my husband a lot in my blog, unless it’s to say that he’s working for my son and I really hard, gone weeks at a time. But I feel the need to take at least one blog post (this one) to brag talk about him.

His name is Aaron and he is Taiwanese. GASP. Interracial couple! No wonder why Aaden is so cute, right? Aaron is actually from the United States, Wisconsin to be exact. Me being from Canada, the french province of Quebec no less, makes you think “Oh, they’ve met online!” and you’re right. But we didn’t meet on a dating site nor FaceBook, we met on an online game called Guild Wars, being in the same guild, doing quests and missions together… Until out relationship grew, decided to meet offline and he bought a plane ticket to come see me. Then I decided to sponsor him as he moved here with me. Long and expensive process, but very worth it.

I want the world to know that I’m head over heels in love with this man. I want to shout how much I’m lucky to have him in my life. Through thick and thin he’s stuck with me; my mother’s cancer, her death, my depression after her passing, the process of getting my new insulin pump, my tough pregnancy with Aaden… Every step of the way, he had a shoulder for me to cry on, a smile to keep me going, a juice box for my lows to be fixed.  And then my father got him a life changing job that would require him to be gone weeks at a time, working on hydro dams, far off into the north in different provinces. He missed Aaden’s birth. He missed Aaden’s first steps, his first birthday… And even though he misses us (and we miss him) he is working his butt off for us. 7 days a week, 77 hours of work per week. To bring in the money for us to live well, for me to be able to enjoy my insulin pump and not go back to the horrid shots. My husband, through everything, has always had a smile for me, good words of encouragement, even when I would cry on Skype and he couldn’t hug me, comfort me, he in his own way would find a way to be able to anyway.

The fact that he is so in tuned with my diabetes shock me sometimes. I say “Juice.” and he knows I’m low. If I’m low, he knows the confusion and anger I’m projecting isn’t personal. He drops everything he’s doing in an instant and comes to my rescue, my hero in shining armour. When I had highs during my pregnancy and that I would spend sleepless nights, testing every hour to bring it down as quickly as possible, crying over the fact that I didn’t want to hurt Aaden as he was being created in my womb, he would sit next to me and tell me everything was going to be okay. When I cried when I got my pump because I thought my mother would be so proud of me, he held my hand and squeezed it gently, letting me know that he agreed in silence. When I would realize I almost had no insulin left in my vial, he would get dressed and go to the drug store in a heart beat. I would test, I’d see a 2.3mmol (41mg) and I’d tell him the number, he would run to the fridge to grab me a juice box. He’s not diabetic, but he understands the numbers. He learned, to be in tune with me. To understand me, and be part of my diabetic life.

Taken from Type 1 diabetes Meme Facebook page.

Did I mention that my husband is going to turn 23 in june? Young to have all this put on his shoulders, but he stuck with me, all these years. And I’m so very thankful for him.

Oh yeah, he is also coming back TODAY! For a few weeks before the has to go back. But not to worry, I will be blogging just the same.

Our wedding day, October 2008

Type 1 diabetics; misunderstood?

Let me start by saying that while I understand what type 2 diabetics go through a daily basis, I believe that Type 1 diabetes should need a whole different name. Why? Because of the misunderstanding between people, between professionals, and I’m a little tired (especially today) of having to explain to everyone the difference between Type 1 and Type 2 over, and over, and over again.

I went to the pharmacy today to pick up test strips. Something I do very often on a monthly basis, ever since I was diagnosed with type 1 diabetes. I recently changed my strips from One Touch to BGStar because of my new glucose meter; the iBGStar. So I’ve only picked up a box of 100 test strips about 2 weeks ago, which makes an average of 7 tests a day. Which is realistic, quite frankly. Upon my arrival, they give me my Humalog (Insulin vials) but let me know that there are still 24 days left before I can renew my test strip order.

Um. Excuse me?

I tell the (new) pharmacist that I’m a type 1 diabetic, I need to test my blood glucose quite frequently. Before and after meals, when I wake up, when I go to bed, before and after physical activities or just when I feel plain weird. She tells me with a very serious face “You’re only supposed to test about 3 to 4 times a day.” And I look at her with a very confused face which reflected something like ~How dare you tell me how to control my disease~ and ~Since when?~ and this is when I repeat myself. “I’m a type 1 diabetic, I need (I emphasized on the needing part) to test several times a day.” Especially these days, with the weight loss and the very frequent lows. I need to recalibrate my pump’s basals, so how am I supposed to know how much insulin to deliver if I don’t know my BG every few hours?

She looks at me, a frown on her face, clearly showing that she did not understand why I need to test so often. One of the difference between type 1 diabetes and type 2.

No, I cannot control my blood sugar with what I eat. No, I cannot ~cure~ my disease. I know I don’t look sick, I am just pancreas-disabled, for life. No, if I’m low I don’t need more insulin. No, that is not an mp3 player, it’s an insulin pump. No, you would not die if you would have to inject insulin multiple times a day. Stop saying that.

So she goes ask the head pharmacist (or what I assume to be, much older gentleman who nods when she speaks to him, looks at me, nods and smiles a little as he recognizes me). She comes back saying they will call me tomorrow because they are out of BGStar strips. It’s okay, I mean I still have a few to last me until tomorrow. Besides, it’s not like they’re out of insulin or anything.

So as I was walking back home, my son in his stroller amused by his surroundings, I kept wondering why. Why is it, that even professional people, don’t know about type 1 diabetes? No, not that they don’t know, but they are clueless about it? They think because you are diabetic, you cannot eat what you want. I actually can. How many carbs? 15? Here, let me inject insulin, I’m good to go. I’m not type 2, this type of diabetes is different, on so many levels! But yet again, I’m labeled as if I was because society does not give proper education on this kind of disease.

I was a little… Not insulted, but deceived, maybe. Especially that I had to explain, again, what type 1 diabetes was, to a pharmacist.

Did you get your diploma in a Cracker Jack box, missy?

Weight loss: weight-in #2

What a week! Actually, it’s been pretty boring for the most part, non-dabetic wise; rain, cold, no walks outside unless it’s to go to the car and drive to the grocery store. I think it’s the only outings I’ve done with my son and it showed! He got back at me almost all week, Mr. Grumpy face. Well, the fact that four, yes FOUR teeth are coming out is making him extra grumpy, so it doesn’t help. But no park trip, no walks outside, just plain old inside watching Baby TV when we’re not playing games or I’m not doing house chores or playing Zumba.

Diabetic wise, my body decided to step up and kick my butt. I had to put my basal rate at 75% basically all week and I blame that one two things; weight loss and physical activities. I’m moving. A whole lot than I was before I started this weight loss journey. When I sit on the couch, I remind myself “Isn’t there anything else to do that would require me to actually move?” and then there’s something. There is -always- something to do. Dishes, vacuuming, cleaning, playing with my son, you name it. So I was low more often than I was high. Look see for yourself!

See all the red dots? Those are lows from this week. Eek!

So for all the calories I would spend, I would eat back a lot. Orange juice, followed by bananas or nuts.

Lather, rinse, repeat.

And this is how I felt for most of the week...

I wasn’t expecting much change in my weight. I mean, my pants have become slightly looser, but I blamed that on wearing them like three times in a row and them becoming stretched. Although when I looked in the mirror, my “muffin top” looks more like a “bread top”. Love handles that are asking for still too much love. So this morning, I hopped on the scale. And then I remembered; yesterday was a bad day before a weight-in! Went to my uncle’s, ate lasagna, a Tiramisu, drank a glass of wine and had a scoop of maple ice cream… Yup, I busted my Weight Watcher’s points and went into those cheat points. I should have weighted myself beforehand, but oh well. Let’s see…

So as I stepped on the scale, thinking about my week, the orange juice at 90 calories a glass, had about 15 to 20 of those for sure… My night before, where all the good foods crashed in my system… But took in account all the Zumba I’ve danced, the soccer I played with my son, the cleaning I’ve done… And I stared at the scale at what seemed like an eternity before it showed me the numbers.

206.4 Lbs.

Two hundred and six (point four). From last week, I have made it to my goal of losing 5 lbs once again! I’ve lost five pounds! So that means that I’ve lost 10 lbs since the beginning of my weight loss journey! Me! Someone who is blaming everything on the fact that being diabetic is contributing to my weight gain. That being diabetic makes it even harder to lose weight. (It -is- true though…) That for all these years, I’ve blamed it on being diabetic and my crazy insulin intake, the lows, having to drink juice all the time… And I’ve lost more weight in two weeks than I have in about 10 months.

I can do this. Today, I’ve realized that yes, I can do this!

And I’ve got to keep that line going downwards!

Bleeding Cannula!?

I realize that I have to change my injection site every 3 days. Having no more health insurance covering them, I make them last as long as I can, sometimes up to 8 days. But doing this also increases the chances that the insulin will become less effective as the injection site becomes “overly used”.

Two days ago, I removed my site (Well, it almost removed itself the adhesive band wasn’t doing it’s job anymore!) and found out the reason why I was high most of the time.

Well then! I didn’t even see the blood going through nor did I feel the insulin coming out. Some of it was actually coming out of the site, hence why I was so high all the time. It happened to me before, but so rarely that I didn’t even remember to check the site when my BG started going up. I blamed it on hormones, but usually, when it’s -that- time of the month, I drop down, I don’t go up.

Well! New site, new beginnings! Next time I’ll check as soon as I have an abnormal reading!

Do you change your site every three days or do you extend it’s living time on you?

Finger or forearm blood tests?

While I was reading my iBGStar user guide, I was reminded that you could now use your forearm to do your blood glucose tests. To me, testing on my fingertips isn’t a big deal. I don’t find it hurts (anymore) and I’m wondering if doing the tests on my forearm would benefit me in any way. So I’m doing my own little research to find out what positive or negative points I could find in changing my method of testing my blood sugar.

I wish my insurance would cover the CGM (Continuous Glucose Monitor) but I can’t really afford the standard 50$ every 3 days. That way, I wouldn’t have to test so often during the day, just less as you still have to make sure the results are accurate. But that’s another issue.

Abbott Diabetes Care suggest that testing on the finger is reccommended when you think your blood sugar is low. So I’m guessing that finger tests are more accurate, but that’s just a theory. The only benefit to testing elsewhere on your body I’ve found while searching the net, was that it’s less painful. But other than that, I’m wondering if any other kinds of benefits could emerge by doing so.

Are you testing anywhere else than on your finger tips?

 

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