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DiabeticallyYours

Living life as a Type 1 Diabetic.

Archive for the tag “blood glucose”

The iBGStar in a diabetes congress!

Yesterday I got an amazing e-mail from Weber Shandwick, on behalf of the global Sanofi Diabetes division’s team for the iBGStar meter! And guess what? They liked the review I’ve done and want to show snippets from it during this year’s European diabetes congress by Sanofi!

I’m so very excited and deeply honored that they even saw my video to start with, let alone liked it! I’ll keep you updated on more things to come with my future projects concerning diabetes stuff!

 

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Crazy busy, crazy BG.

OH dear gods.

Hi! It’s me again! I’m… Back! Somehow! It’s been one crazy ride through the gaming community on my part.

All this started with me starting a blog about a game I really love, Guild Wars 2. It’s actually a fan site and, after ArenaNet promoted it on their Facebook page, it boomed. I got really busy managing this community and, well, I was in the process of moving, too! So, creating a new community, moving to a new city, packing, unpacking, then new plans about Chronicles of Tyria (The community) with a brand new podcast, contests, holy gee I’m extremely busy. Being with Aaden, alone at home (My husband got another contract in another province!) I’m managing a community, a podcast, a toddler, a house and, most importantly, diabetes.

How hard is it to manage diabetes when you’ve got crazy events going on? Well, I’m really not good at it, to be honest. I need to setup a routine. I need to start working out again. (Oh yeah, don’t get me started on my weight loss journey, because that went down the Drain!) Good news is; Aaden is starting daycare at the end of August. So I’ll be able to work during the day on the community (Right now I ‘work’ until 2 or 3 o’clock in the morning and during Aaden’s naps) and I’ll get some more sleep.

The upside of working so hard is that the community is blooming. We’ve hit more than 80 subscribers in 2 weeks for our podcast, more than 2.5k views! Super stoked about it!

Downside; I’m not testing my BG as often as I could. Sometimes I end up having hypos during the podcast recordings, so I have to set my mic on mute and drink a juice box. Not the best diabetes management. Sometimes I test before meals and I’m at 15. What was that about? Oh, right… I didn’t test before breakfast because I was answering emails, keeping  up with Facebook and twitter, scheduling meet ups… And the list goes on.

Also, I’d like to point out something to people who say that “Being a stay at home mom give you all the time in the world to do everything you need to do”.

Having a baby/toddler/kid at home is like being at work. But work lasts around, oh, ALL DAY, you get no break and you have to cook meals for your boss on top of it. It’s all fun and games when we go to the park, when we cuddle after we played for a while, but you’re always busy non the less. You pick up toys; constantly. You do groceries but really, you have to hurry up so you can get home before lunch, prepare lunch, undo bags, feed your kid, put him to bed for his nap and then, you get to sit down for about 15 minutes. Afterwhich you need to do the dishes, clean whatever mess you left in the kitchen and all the food your son threw on the ground because it looked like the best thing to do at the time… And then, you prepare things for diner and work a little if you can.

I’m not sure I want to list all the things you need to do, but having to manage diabetes on TOP of it all, I find extremely difficult.  Sometimes I don’t test before bed anymore. I’m so extremely tired that I flop in bed, sometimes still dressed, just to get up in the morning and since, lather, repeat.

Here’s a little look see at my very bad diabetes management. Don’t be scared!

Courtesy of my super duper iBGStar which is neglected!

 

When I went to see my endo last april… She said my control was excellent. I wonder how disappointed she would be right now.

And somehow, I wish more people would understand what it feels like to live with diabetes. Maybe they would give me a break sometimes!

I will be updating my blog more often, that’s for sure. I won’t be rambling much on the community, but more about diabetes and about being a mom, you know, things I used to be blogging about Haha!

#DBlogWeek – One thing to improve.

Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

When it comes to my flaws (and I have many of them), I’m not scared to admit them. I know I am a control freak, I like when things go my way. I know that I tend to burst in anger instead of assessing things (Never on a professional level though.) And I try to fix things, I work on my flaws, and sometimes it takes a while, sometimes only a matter of days. One thing I have not been doing ever since I gave birth to my son, diabetes wise, is to test my blood sugar before bed and right after I get up. And it’s important, you know, so that my BG stays nice during the whole 6 or 7 hours of sleep. If I have a BG of 10.5 (or 180mg) I would normally wait until it’s fixed. And I tend to never test. I have a snack at night, my pump beeps during sleep time for my BG reminder, I don’t hear it and keep on dreaming.

The next morning, I tend to my son; diaper change, sippy cup, cuddles, breakfast. It takes about half an hour or so before we sit down to have breakfast, and that’s when I test; right before eating. Most of the time my BG is good, but there are those crazy 2 weeks in the month where it’s not so good. Female hormones; gotta love ’em. Sometimes I test before breakfast and I’m not suprised to see a 15. (Or 270 for you mg readers).

I should test at those times. Having high blood sugar when you sleep, on long term, isn’t necessarily great. And then I’m mad at myself for losing this crazy control I used to have when I was pregnant.

And for not having a CGM.

#DBlogWeek – One great thing.

Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well!

This is kind of funny actually, because it makes me think about my brother Vincent and something that happened when I visited my father last week. It made me realize that I was somewhat of a pro at guessing Carb counts. And I’m pretty sure it takes a diabetic to do that, right?

When I go over to my father’s place, I don’t necessarily chose what I’m eating and most of the time I have to guess how much carbs there are in one meal in order to make the input in my insulin pump. Was that half a cup of rice or is there more? That meat marinated in a carb-loaded sauce all night… We go out to eat often… And that’s always a guess!

At home, I rarely have anything full of carbs, let alone ice cream or chips or even donuts. When I go over there, it’s Ice cream heaven. My brother Vincent is staying at their place for the summer because he works with my father when he’s not in college, and my step-mom buys so much ice cream, the freezer’s full. Yes, Vincent is an Ice Cream lover. No, he is not diabetic. But I am, and temptation is bad! One night, after a day of outside activities and fun under the sun, We had those Drumstick Ice cream cones – The Caramel ones – and they, were, GOOD.

So as I push the bolus button on my pump, I ask my brother “How many carbs are in one? 35? Check on the side of the box for me please.” And so he answers with “37! Clooooseee!” And then I have to ask “Fibers? Like 1?” and there was 1g fiber. So, 37 – 1 = 36. Pretty close for carb guess!

You know what he did? High five’d me for guessing right. Ooooh, Vincent, you’re a funny guy!

But I guess I am an awesome carb guesser. And for that reason, my blood sugar readings are often accurate even when I go out to eat.

Vincent feeding my son Aaden a yummy Oreo Ice cream sandwich. Mmmmmmm.

Weight-loss journey: Weight-in #5

I woke up this morning dreading the scale to begin with.

This week, I had worked out maybe twice, walked a bit every day, packed a little for the move and ate junk food one day. I mean, REAL junk food. Whoever visited Quebec once in their life probably tasted the most delicious junk food ever; Poutine (Pronounced put-sin). And I’m not talking about what the rest of Canada claims as Poutine, but real, french canadian, grease induced, sodium praised, Poutine. And it was delicious. I had a downfall. And I blame this on raging hormones that happens once a month, where my blood sugar goes whack one week and keep me low the other. With it comes cravings of the most intense levels. And I couldn’t resist.

So, recap; little physical activities, big eating.

I still followed my Points allowance though.

So I stepped on the scale expecting a weight gain, thinking about the worst where I would gain back all the weight I had lost in one week. But with it all, I’ve still managed to lose a pound. Two-O-Four read the scale. So that means I’ve lost a total of 12lbs so far. Come to think of it, that’s a pretty good amount. I’m SO close to being back in the 100’s and even closer to my Weight Watcher’s 1st goal weight.

All in all, not bad! But I will put in much more work this week, for sure. If my body is saying “Go on, lose some!” I’m gonna work it! Especially since half the house still needs packing before the move… I have a long ways to go!

Diabetes and memory loss.

I had a half day off from being a mommy and wife yesterday as I took the road to my endocrinologist’s. Sunny day, sunglasses, lounge music… Driving an hour to go shopping and another hour to my appointment. (My endo is far away because I moved last year but kept her.) I left my son with my husband and, for the first time in a while, had some time to myself, for myself.

I spent about 45 minutes in my favourite book store. It felt good.

I was happy to see my endo and she was happy about my results and seeing the iBGStar in action, live, for the first time. She knew about it but never really had seen one in person, so going through my stats and multiple sections was fun for her. I could tell by the glint in her eyes. You know, like when you have something shiny in your hands. But I digress.

I remembered a small conversation I had with Leah about high BG and memory loss, so I asked my endo about it. And here’s what she told me.

High blood sugar and confusion come together. Just like low blood sugar’s confusion state, but in a less drastic way. However, high blood sugar is not linked to dementia or memory loss. Long term, low blood sugar is. And by long term, she said “Frequent low blood sugar over the lapse of 10, 15 years or more”. Your brain needs sugar in order to feed itself, and so the constant low level of sugar in your blood can lead to brain damage that cause memory loss, dementia and all those nasty things. She also said that this study was done on type 2 diabetics on insulin treatment and that type 1 diabetics did not have such a study. Because type 1 is rare and that type 2 has become an epidemic, they have not bothered to conduct the study within type 1s.

I’m assuming it’s the same, if not worse, with type 1s.

So there you have it. Low blood sugar can cause damage to your memory, as studies show. Hence why it’s so important to take care of your diabetes.

Oh, and my latest A1C? 6.2! Awesome!

Tiny post, big impact.

What’s YOUR reason?

 

The blood test chronicles.

It might sound weird, but every 3 to 6 months, I am excited about my blood tests. It might be just a diabetic thing, but I’m thrilled to go to my endocrinologist’s to have my test results read to me. Partly because I love to know what my body has been up too from change to change. Especially now with my weight loss and my beautiful BG readings, I am expecting a nice A1C. My last one, 6 months ago, was of 6.7 and I wasn’t very thrilled with it. My BG was high very often and I wasn’t being very careful about it, mostly because Aaden was still very young and testing my BG was optional to me. I had other priorities, being alone with my son.

And so next week, I have an appointment with my endo, so I need to go for blood tests. Only if my body would cooperate.

I have been so active, eating so well, my blood sugars have been great! Only thing is that I have hypos during the night now. So, two nights ago, I needed to drink and eat in the middle of the night, so I couldn’t go for the blood tests since I need to be fasting for 12 hours. Last night, everything went well, but as I got up this morning and tested my BG, I saw 3.2 mmol on the meter (57.6mg). No way am I going to drive and hurry up to the hospital for blood tests with this reading. So tonight, I think my best option is to set my basal down on my insulin pump. 75% maybe. I have to get those done to have my results next week!

To think that before being a diabetic, I was scared of blood tests, scared of needles… And now my daily life has them around and I don’t even notice it. Crazy how you get used to things. And how people around you get used to those, too.

In other news, my husband learned that his step-father was diagnosed with Type 2 diabetes this week. It is becoming an epidemic. Almost everyone has someone in their family with type 2 diabetes. Sometimes though, I wish they were type 1 so I could relate with others like me, in person.

The strength of a non diabetic husband.

I don’t mention my husband a lot in my blog, unless it’s to say that he’s working for my son and I really hard, gone weeks at a time. But I feel the need to take at least one blog post (this one) to brag talk about him.

His name is Aaron and he is Taiwanese. GASP. Interracial couple! No wonder why Aaden is so cute, right? Aaron is actually from the United States, Wisconsin to be exact. Me being from Canada, the french province of Quebec no less, makes you think “Oh, they’ve met online!” and you’re right. But we didn’t meet on a dating site nor FaceBook, we met on an online game called Guild Wars, being in the same guild, doing quests and missions together… Until out relationship grew, decided to meet offline and he bought a plane ticket to come see me. Then I decided to sponsor him as he moved here with me. Long and expensive process, but very worth it.

I want the world to know that I’m head over heels in love with this man. I want to shout how much I’m lucky to have him in my life. Through thick and thin he’s stuck with me; my mother’s cancer, her death, my depression after her passing, the process of getting my new insulin pump, my tough pregnancy with Aaden… Every step of the way, he had a shoulder for me to cry on, a smile to keep me going, a juice box for my lows to be fixed.  And then my father got him a life changing job that would require him to be gone weeks at a time, working on hydro dams, far off into the north in different provinces. He missed Aaden’s birth. He missed Aaden’s first steps, his first birthday… And even though he misses us (and we miss him) he is working his butt off for us. 7 days a week, 77 hours of work per week. To bring in the money for us to live well, for me to be able to enjoy my insulin pump and not go back to the horrid shots. My husband, through everything, has always had a smile for me, good words of encouragement, even when I would cry on Skype and he couldn’t hug me, comfort me, he in his own way would find a way to be able to anyway.

The fact that he is so in tuned with my diabetes shock me sometimes. I say “Juice.” and he knows I’m low. If I’m low, he knows the confusion and anger I’m projecting isn’t personal. He drops everything he’s doing in an instant and comes to my rescue, my hero in shining armour. When I had highs during my pregnancy and that I would spend sleepless nights, testing every hour to bring it down as quickly as possible, crying over the fact that I didn’t want to hurt Aaden as he was being created in my womb, he would sit next to me and tell me everything was going to be okay. When I cried when I got my pump because I thought my mother would be so proud of me, he held my hand and squeezed it gently, letting me know that he agreed in silence. When I would realize I almost had no insulin left in my vial, he would get dressed and go to the drug store in a heart beat. I would test, I’d see a 2.3mmol (41mg) and I’d tell him the number, he would run to the fridge to grab me a juice box. He’s not diabetic, but he understands the numbers. He learned, to be in tune with me. To understand me, and be part of my diabetic life.

Taken from Type 1 diabetes Meme Facebook page.

Did I mention that my husband is going to turn 23 in june? Young to have all this put on his shoulders, but he stuck with me, all these years. And I’m so very thankful for him.

Oh yeah, he is also coming back TODAY! For a few weeks before the has to go back. But not to worry, I will be blogging just the same.

Our wedding day, October 2008

Type 1 diabetics; misunderstood?

Let me start by saying that while I understand what type 2 diabetics go through a daily basis, I believe that Type 1 diabetes should need a whole different name. Why? Because of the misunderstanding between people, between professionals, and I’m a little tired (especially today) of having to explain to everyone the difference between Type 1 and Type 2 over, and over, and over again.

I went to the pharmacy today to pick up test strips. Something I do very often on a monthly basis, ever since I was diagnosed with type 1 diabetes. I recently changed my strips from One Touch to BGStar because of my new glucose meter; the iBGStar. So I’ve only picked up a box of 100 test strips about 2 weeks ago, which makes an average of 7 tests a day. Which is realistic, quite frankly. Upon my arrival, they give me my Humalog (Insulin vials) but let me know that there are still 24 days left before I can renew my test strip order.

Um. Excuse me?

I tell the (new) pharmacist that I’m a type 1 diabetic, I need to test my blood glucose quite frequently. Before and after meals, when I wake up, when I go to bed, before and after physical activities or just when I feel plain weird. She tells me with a very serious face “You’re only supposed to test about 3 to 4 times a day.” And I look at her with a very confused face which reflected something like ~How dare you tell me how to control my disease~ and ~Since when?~ and this is when I repeat myself. “I’m a type 1 diabetic, I need (I emphasized on the needing part) to test several times a day.” Especially these days, with the weight loss and the very frequent lows. I need to recalibrate my pump’s basals, so how am I supposed to know how much insulin to deliver if I don’t know my BG every few hours?

She looks at me, a frown on her face, clearly showing that she did not understand why I need to test so often. One of the difference between type 1 diabetes and type 2.

No, I cannot control my blood sugar with what I eat. No, I cannot ~cure~ my disease. I know I don’t look sick, I am just pancreas-disabled, for life. No, if I’m low I don’t need more insulin. No, that is not an mp3 player, it’s an insulin pump. No, you would not die if you would have to inject insulin multiple times a day. Stop saying that.

So she goes ask the head pharmacist (or what I assume to be, much older gentleman who nods when she speaks to him, looks at me, nods and smiles a little as he recognizes me). She comes back saying they will call me tomorrow because they are out of BGStar strips. It’s okay, I mean I still have a few to last me until tomorrow. Besides, it’s not like they’re out of insulin or anything.

So as I was walking back home, my son in his stroller amused by his surroundings, I kept wondering why. Why is it, that even professional people, don’t know about type 1 diabetes? No, not that they don’t know, but they are clueless about it? They think because you are diabetic, you cannot eat what you want. I actually can. How many carbs? 15? Here, let me inject insulin, I’m good to go. I’m not type 2, this type of diabetes is different, on so many levels! But yet again, I’m labeled as if I was because society does not give proper education on this kind of disease.

I was a little… Not insulted, but deceived, maybe. Especially that I had to explain, again, what type 1 diabetes was, to a pharmacist.

Did you get your diploma in a Cracker Jack box, missy?

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